marty was the first man i knew who was a breast cancer survivor. we also learned he was deathly allergic to shrimp – while we were all at joe’s crab shack devouring seafood. yiiikes. it feels like a zillion years ago, but it was a great community of folks – all who were dedicated to their craft and showing at large wholesale shows, lining up accounts with small and large shops across the country. it was before streaming was really The Thing and i was moving boxes and boxes and boxes – thousands – of cds with displays, all to be sold by real people in real places. the days were long – yamaha delivered in a piano and it was hours upon hours of playing, talking, writing purchase orders, selling cash and carry. in the evening we would all sometimes gather together somewhere, to share stories, to unwind. that one night, joe’s crab shack made us a little bit nervous. we traded seats around so marty wasn’t near any shrimp and wondered why we didn’t go to a steakhouse.
community makes a difference. in this latest lean time of community that is now particularly pronounced.
i watched as my dear big sister shared her breast cancer story on facebook. she is now, thankfully, on the other side, mostly healed from surgery and radiation, slogging slowly through a period of difficulty adjusting to a long-term hormone blocker. i know, without a doubt, that the people who sent her their love – even online – helped her. a community that rallies around is the village we all need, especially in desperate times.
heidi and i spent so very much time together. our mutual work was in the oncological field – performing at large and small cancer survivor and breast cancer awareness events. there are many posts in this blog about places we have been and i consider them to be moments i was honored to be a part of the supportive oncology community and a part of the story.
my grandmother-who-i-never-knew, my dad’s mom, died of metastatic breast cancer. my sweet momma had a double mastectomy at 93. my dad was a lung cancer survivor and my brother died because of lung cancer. this year my sister’s breast cancer diagnosis scared us.
in the middle of the night, when things are raw, i decided that a “sisu” bracelet was in order so i found an artist who designed and crafted it out of silver so that my sister could wear it and know i was with her, a part of her community, holding her close. i ordered one for me as well. because the middle of the night can be a scary time when you are thinking too much.
marty didn’t mention the whole shrimp-thing until we were already at joe’s. i guess he had decided to just go-with-it, to just live. he had already been through so much.
though i really wouldn’t change it – as i love my “sisu” bracelet – i wonder if it should just say “alive”.
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click here for a few other words about “i am alive”
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reverse threading 