it was but a mere second – nigh unto 4:30 in the morning – when my sweet poppo was on this planet and then wasn’t.
i said a wee-hours-goodnight to him, propped in a hospital bed at home in their house. he whispered back to me. i tried desperately to memorize his face, the love in his eyes.
and before the birds woke up in the morning, that morning eight years ago yesterday, i went from with to without.
three years later, we left my sweet momma sitting on the edge of her assisted-living-bed, grasping onto the blue-notebook-that-documented-their-moments-in-europe, her expression dancing with excitement, waving to us. i tried desperately to memorize her face, the love in her eyes.
it wasn’t but a couple weeks later, on the road back again to florida, around the time the sun is highest in the sky, i went from with to without.
suddenly, i was orphaned. suddenly i was without the two people who gave me life. suddenly i was without the two people who could answer any question i had about my growing up. suddenly – in a split second – nothing was the same.
100,000 families. in the past few months, due to the global pandemic decimating our country, 100,000 families have desperately tried to memorize a loved one’s face. they have held tightly to the memory of love shining in their beloved’s eyes. they have moved from one split second into the next. with to without.
and last night, on the solemn occasion of this number passing from 99,999 to over 100,000 – that one second – one person- one life – one with to without – i expected, foolishly, that something would change. that there would be gut-wrenching acknowledgement. that there would be communal nation-wide mourning led by the person in the highest seat in the land. that there would be kind, generous, thoughtful words spoken, grief-filled heart-soaked empathy for all that the withs-to-withouts have gone through.
and nothing.
we need remember. all of it. these are our split seconds.
i have spent the last two weeks gathering selfies from My Girl’s friends and family with birthday signs and wishes. today is her 30th birthday and, with the pandemic restrictions, i can’t be there, out in those high mountains, to be the “return-to” information written on her bar-hopping balloons like i was on her 21st birthday or make her a special ariel or pocahontas or ballet slipper or happy face cake like i did every year she grew up. like many of you, i feel sad and challenged by the inability to celebrate or be with each other.
so i decided to throw her a surprise party. from all walks of life family and friends showed up and sent me selfies with signs they created or videos or photos they brilliantly photoshopped with greetings. i facebook messaged and texted and talked with people i had never met, all generous and kind and wanting to help; every one of them a valued person in The Girl’s life and now in mine. love at its best, i cried over and over receiving these and, after spending the entire day yesterday formatting all of it into a video, watched it again and again, tears streaming down my face. it is an amazing thing to see how loved your child is.
so, today, i woke up refreshed. my heart was full and i couldn’t wait to share this video and a gift video i made as well with kirsten. i wish i was hiking with her this morning or having gnocchi and wine with her tonight. but…
yes, it’s a virtual birthday – all of it.
but it is virtually impossible to not feel some peace in all this love. and i know that tonight, when i lay my head on my pillow, i will rest easy.
in the wee hours of the dark night, long island sound is quiet. crunch and i would sit in his boat, inky skies punctuated by a million stars and the lights of the shore, our fishing together comfortable, a thermos of coffee to share, some conversation. treasured memories now, i was adrift with one of my best friends and completely at ease.
we were probably 12 or 13 when the sunfish sailboat we were in became becalmed. sue and i sat out in the middle of the big pennsylvania lake and, with no wind from any direction, started laughing. we were in no danger; we had already capsized a couple times and had survived that. but we were a distance from the shore and i don’t remember there being any paddles in that little sailboat. at some point my uncle must have realized our predicament and came out in his speedboat with a towrope. the sunburn decades-faded, i was adrift in that lake with one of my best friends and completely at ease.
as we sit in the middle of this pandemic, this time of change and this time of no-change, we feel motionless, even stranded. we are learning patience, we are learning to slow down; we are learning. we are changing our expectations and our measurements of success. we are marooned in a vast water, drifting, unsure, way out in the deep. but all around us are others who are generously sitting with us, sharing, nurturing us, also drifting. our sails are buoyed with winds of kindness, our anchors a steadfast dedication to the well-being of all. we are grateful for the goodness of brilliant minds, the commitment and sacrifice of front-liners, the respect and honoring of that which keeps us all safer and healthier.
and one day, as we look back at this time, for surely it will someday be a memory, we will see that we were adrift with our best friends and, though trusting and in the care of each other, it truly was a time of unease, the shoreline was not visible and the fathomless water in which we were stranded was way bigger than us.
and as yesterday passed into today and i drifted off to sleep i knew, despite that she is on a different plane of existence, my sweet momma was holding me close to her. it was bracing to think of the five year mark that has just passed now since she has been gone and the every-day-missing-her that goes along with that. no different with my dad. in a month it will be eight years and i can hear his “hi brat” in my heart. i have no doubt that he is right there, holding on tightly. both of them. forever and ever.
it is a fact. this parenthood thing is mind-bogglingly paramount. ever forward from the day they are born. it is all-consuming. in every good and every daunting way. every most-jubilant and every brutally-difficult way. every securely-confident and every tumultuously-distressing way. every way.
in this pandemic time of chaos we pine for a sense of normal which escapes us. anxiety barges in and replaces our regular routines; peace escapes us. we long to see each other. we feel tired; we feel restless. we sleep more; we cannot sleep. we are astounded by the surrealness of this; we are crushed by how real this is. and we worry. it is hard to be away from those whom we love and knowing that right now we cannot go to them compounds it. my heart needs to hug My Girl and My Boy and see that all is well. we feel anxious. our wishes go unfulfilled.
and yet as today passes into tomorrow and they drift off to sleep i know, despite how busy they may be or where they are in the world, that i am holding them close. that no doubt can exist – i am right there, holding on tightly.
and i hope, like you with your beloved children, that they can feel it. forever and ever.
“…Two roads diverged in a wood, and I— I took the one less traveled by, And that has made all the difference.” (Robert Frost)
a product of sunday-drive-parents, i am a meanderer. i’ll choose a backroad. i’ll choose the woods. i’ll avoid the six-lane interstate. i’ll avoid the leader-led-coach-bus-travel tour group. i blame my sweet momma and poppo.
in an obvious life metaphor, choosing to be an artist of any medium -for the long haul- is choosing to be a meanderer. it’s choosing to live life looking for and celebrating layer cakes – a layer cake of work. it’s a continual wracking-of-the-brain for the next idea, the next project, next pitch, the next initiative, the next validation of your artistry. it’s continual exploration and continual growth, surprises and intrinsic rewards of the heart. and it’s continual worry: how will what you earn equal or be greater than that which you owe.
my parents encouraged my every musical moment. neither of them was a musician, but their steadfast support reinforced the decisions i made that were more out-of-the-box. their prideful applause inspired and fed me, lighting a fire even when the embers were falling to ash. times i would rise and fall and rise again, i blame my sweet momma and poppo.
in somewhat recent days, when i was bemoaning the exponential cost of healthcare, someone asked me if i needed to see a financial counselor, someone who could ‘teach me’ how to budget. i was stunned at the lack of sensitivity and actual empathy. “no, thank you.” i responded, while trying to maintain the sound of calm in my voice, “i am actually quite good at budgeting and truly love math. this is not rocket science. it is simply a case of not having enough income, even from several jobs, coming in.” a meanderer. those sunday drives.
i’ve read plenty of ‘being the youngest child’ articles. it seems that my profession, lean toward autonomy, artistry, careful rebellion are all because of my place in the sibling line-up. so, once again, i blame my sweet momma and poppo.
the urge to be off-the-beaten-path, literally and figuratively, to quietly sit in the middle of the woods or i-wish-more-often the top of a mountain, to stand on a wooden stage with a piano, a boom mic, a few songs and a story to tell: things that are part of my very soul. the core. i blame my sweet momma and poppo.
sometimes we are silent. sometimes it’s better that way. a fluid point, a fine line of balance, there’s so much to say; there’s so much we should avoid saying. silent days.
we walk or hike outside, we take limited trips to the grocery store. not a lot of interaction, the way it is supposed to be right now. with varying cautions about distancing and asymptomatic spreading and aerosol molecules, the experts have my rapt attention. although i do not have the ability to make as much of a difference in this as those who are on the front lines, i need do my part. responsibly and respectfully.
making do with texts, phone calls, work videoconferences, online hangouts with friends, it’s still much more silent than it ever is, normally.
there are reports of residents hearing birds again in wuhan. the woodpecker is busy in our backyard, the mourning doves call, the frogs quip to each other in the woods.
and so we walk, quietly. we cross to the other side of the street, we single-file on the other side of the path. maybe here and there people answer to our soft hello as we pass. we shop, rarely, pushing a cart, quickly assembling what we need. we listen to the sounds that often linger unheard below the noise.
and even above the masks, even in the silence, i can see their tentative smiles.
“hope…it makes you breathe differently. it makes your heart beat faster. it makes your knees weak and your ability to wait strong. it makes you weep with anticipation and holds you close with others who are also hoping.” (reverse threading, dec. 7, 2018)
i have done time on the kitchen floor. like you, i have been brought to my knees with grief, anxiety, worry, pain, shame, fear, sadness, loneliness, anger, disappointment. when you are on the floor, any movement seems monumental. anxiety is crushingly powerful. it seems unlikely you will rise. and even as you go about your days, doing the things you do in life, it seems you will remain on the virtual kitchen floor.
but then, there is a moment. it appears illusory yet it is luminous. it is a mere butterfly wing, the slightest of silk tendrils, but it is there. elusive and tiny, it asks for absolute focus. like viewing through the eyepiece on binoculars, you slowly steady your gaze. something inside you knows. something tells you to reach for it and hold it gently in your shaking hands. it is hope.
“hope. there aren’t many words like this…describing that which you can actually – viscerally – feel in your body. it makes you breathe differently. it makes your heart beat faster. it makes your knees weak and your ability to wait strong. it makes you weep with anticipation and holds you close with others who are also hoping.” (reverse threading, dec. 7, 2018)
waiting for a train to go or a bus to come, or a plane to go or the mail to come, or the rain to go or the phone to ring, or the snow to snow or waiting around for a yes or no or waiting for their hair to grow. everyone is just waiting. waiting for the fish to bite or waiting for wind to fly a kite or waiting around for friday night or waiting, perhaps, for their uncle jake or a pot to boil, or a better break or a string of pearls, or a pair of pants or a wig with curls, or another chance. everyone is just waiting.
somehow you’ll escape all that waiting and staying. you’ll find the bright places where boom bands are playing. with banner flip-flapping once more you’ll ride high! ready for anything under the sky. ready because you’re that kind of a guy!
oh, the places you’ll go!”
(dr. seuss)
an eighth rest. these two broken wrists are down from a quarter rest to an eighth rest. and waiting.
we are all waiting. for hours, days, weeks to go by. for healing. we are biding time. on hold. on eighth-rest-repeat.
and in that vast biding of time we are maybe finding that some of the things we have busied ourselves with don’t count as much. and some count more. maybe our time of waiting will reveal to us that which is most important. maybe it will be a time of needed rest. a time of slowing down. a time of subitotacet. a time of honoring those who truly help us. a time of quiet conversation, of learning new things, of disassembled notes gathering together from their places in the stars to form a new song.
we wait. and we don’t know when the waiting will stop. but oh, during this waiting, and after the stand-still-pause is over, oh, the places we will go.
my emotional well was full when i woke up today. thinking of us, our children, our families, our dear friends, our community, this world. i desperately want to gather our beloveds in, hold them close, protect them.
i have no words for all of this; i have too many words for all of this. i fear that none of them are helpful, none of them are wise. it’s just me. and, like you, carrying the weight of the world one step at a time, one quiet minute at a time, staring out the window and wondering.
bananas. they were $.49 lb. we picked up a bunch and walked to the register. a moment later, with no question or drama, we paid our $1.17 and left.
the next step in my two-broken-wrists saga is occupational therapy. not because we do everything with our hands. not because we write with them and open doors with them. not because we use them for our personal hygiene or because we cook with them. not because we drive with them or dress with them or shake hands with them. but because using my hands IS what i do. the therapist asked me how long i have played the piano. 53 years. it’s what i DO. so getting my wrists back to pre-snowboard-fall is imperative to me. there are no other options.
before we went to this first appointment i, responsibly, called our healthcare insurance company – the one we pay $29,000 a year to – the one with the slogan ” for the care you need at a price you can afford” – to check in about the coverage of OT. i was told, after much menu-choosing, that i am limited to 20 visits and that the cost will be $50 per visit. with the OT’s recommendation that my getting-these-wrists-back-trajectory would involve appointments twice a week, that would add $400 to the already-$2400/month in healthcare costs. bracing. impossible.
the OT office checked in with me to remind me of my appointment, coincidentally, just after i hung up with the insurance company. i told them what i had just learned and they insisted i was wrong. “no,” i was told, “we have never heard of molina charging ANYthing for a copay.” I asked them to please double-check for me and they assured me they would and that they would apprise me at my appointment.
when i arrived, the receptionist checking me in told me that they had their 23-year-insurance-veteran in the office check and that there would be no copay. i asked them to provide a written document to that effect so that if and when i was billed i would have recourse. they assured me that they would triple-check and to stop back after my appointment.
at the end of my appointment with the therapist, the receptionist told me that “no, you don’t have to pay $50 per visit. it’s actually worse. instead, you have to pay 100% of all fees until your thousands-of-dollars-deductible is met.” what?!!!! now this is the third story i am hearing about the same service with the same provider and the same insurance company. who am i to believe?
i stood there and literally cried in front of the receptionist in the middle of the waiting area. you mean to tell me that our $29,000 a year doesn’t really cover much of anything??? this is blatantly wrong, grossly outrageous.
bernie sanders, if you have listened to him speak, has given a example of the perverted and pathetic healthcare in this country. he speaks about a family who makes $60,000 a year and that this family must pay $12,000 for healthcare. “that’s 20% of their gross income,” he bellows. what i wish he would add is this next example: consider a couple who makes say $65,000 a year (this is the magic healthcare cliff for two people and only $5000 more than the previous example). that couple will pay anywhere between $24,000 and $29,000 for a policy that will still have high deductibles and yet (clearly) not actually have good coverage. i want to jump on the bernie-bellowing-band-wagon and yell, “that’s 45% of that couple’s income!!! what is wrong with that???? EVERYTHING!” how is it that we can live in this country, the richest country in the world, and have the worst healthcare for our populace? how is it right to set the populace up for financial disaster when they have to deal with the eventual health scare, injury, illness?? (on a side note, i won’t even beGIN to start talking about Covid-19, for i have nothing good to say about the administration’s handling, lack of information or truth, and unpreparedness for this pandemic that will truly test the resiliency of our country.)
when i could take a breath at the receptionist’s desk i asked, “what do these appointments cost?” how much is my professionalism worth to me, i am thinking. i earn my living playing the piano, i am thinking. i have fifteen albums of piano music, i am thinking. i am a pianist, i am thinking. i just need care for my wrists so that i can do what i do, i am thinking. at what cost, i am thinking.
but healthcare is not like bananas. i was told, “we can’t answer that. we don’t know.” i beg your pardon??? “billing handles that. and it’s different depending upon insurance plans and whether or not you have appropriate insurance.” i beg your pardon???? “what if i just wanted to pay cash right now?” i ask. “you can’t,” she says. “we don’t know what it costs.”
i wonder if it would be more if i paid cash – after all, i’m not an overstuffed insurance company that has the capacity to deny portions of the billing or disallow costs or base payment on the coding used to describe my treatment, while at the same time accepting ridiculously high premiums from clients with the knowledge that the insurance offered is incomprehensibly lacking.
no. i’m just a person who needs her hands.
we left, went to the store and bought more bananas.
