this is the last day of national cancer survivor month.
and in the mess of chaos that this country is in, i haven’t seen much press about cancer survivor month.
instead, in the eddy of cruelty and the deplorable diminishing of real people with real stories – the administration has slashed medical and scientific funding, particularly as it has impacted cancer research.
it boggles the mind. truth be told, i don’t hesitate from saying it should boggle your mind as well.
i spent the better part of a decade involved in oncology events, touring with my dear friend and cancer survivor heidi, to lift up survivorship, to honor research, to celebrate pharmaceutical breakthroughs, to buoy non-profit fundraising for efforts related to cancer. it was good work, these events, as they brought us onto stages to speak and sing, to bring the heart-part to events that were more left-brained, to reinforce the heart-part to events that were already immersed in emotion and hope.
i cannot imagine a civilization that does not want to protect its citizens – its adults and its children – from the ravages of disease – any disease – nonetheless cancer.
i cannot imagine a civilization that does not want to do anything it can to provide treatment to its citizens – its adults and its children – in the ravages of disease – any disease – nonetheless cancer.
i cannot imagine a civilization that does not want to dedicate intensive research and profoundly generous funding to prevent its citizens – its adults and its children – from further iterations of ravaging disease – any disease – nonetheless cancer.
national cancer survivor month is about survivorship. it is about celebrating life, prevailing over horrific disease, acknowledging and pushing back on uncertainty and fear, helping others in these circumstances. it is about hope.
we – sharing the land of this nation – from sea to shining sea – are at a crossroads of choice. is it too much to expect the government of this country to invest in taking care of its citizens – ALL of its citizens?
may we – in this choice – be as courageous as the millions of cancer survivors among us.
“may your choices reflect your hopes, not your fears.” (nelson mandela)
“these incredibly brave survivors speaking out about unspeakable things. it changes your entire f—ing life” (valerie bertinelli)
they were walking toward us slowly, pushing a walker, every now and then stopping to dance a little in place. it is hard not to jive to the EDM music – it sets your spirit free and makes you dance. our son and his collaborator were lighting a fire under a massive audience dancing on waveland and halsted at chicago’s PRIDEFEST.
i noticed their shirt.“i am somebody” it read. i nodded.
it was clear that this person was struggling with something that physically debilitated them, their gait awkward, their pain visible. still, they danced and smiled and fistpumped the air and all of us around them cheered. yes, i thought, you are indeed somebody.
yet this country is working on eliminating all kinds of help for the disabled: medicaid, healthcare, food assistance, education. conniving to make somebodies into nobodies.
the guy in the crowd was visibly upset. he didn’t just hug the people nearby, he clung to them, crying. something was moving him profoundly. i don’t know what it was. but every person near him was acknowledging these moments of catharsis, these moments when he – this somebody – needed their support and love.
i weaved through the tight crowd to get to the front of the stage while we were at milwaukee PRIDEFEST so that i could get close-up photographs of our son on stage. once at the edge of the stage – smushed – i started snapping pictures. the guy next to me turned and looked at me as i was feverishly snap-snap-snapping and said, “this is my first time at pride!” he was elated, joy beaming from his face. it clearly meant the world to him to be there – celebrating – for the first time – maybe being openly authentic in public – for the first time. i was thrilled for him and we hugged. he took out a big handheld fan and fanned me while i – in the humid heat of the pavilion – took more photos. he sought me out in the crowd a few more times, every time this somebody glowing, this giant crowd of people embracing him.
and the administration of this nation – in a disgusting display of homophobia beyond the pale – is going after the very rights of the LGBTQIA community, rabidly seeking to foist their own version of love and sexuality upon all.
in recent days i have read a post with passionately evil words beyond what i can even describe nor care to describe. it was written about alex pretti and renee good. both somebodies who were doing the right thing against horrifically extremist deportation intent. these young people – the same ages as our daughter – lost their lives at the hands of this government. these somebodies who deserve to be here still, living, breathing, celebrating and – yes – constitutionally pushing back.
and now – beyond the evil intentions already in place – in an unconscionable decision by the supreme court, hundreds of thousands of real-live somebodies will likely be hunted down, merely for the beautiful brown color of their skin, a product of where they are from, where they have escaped, from which they have sought legal asylum.
and the statue of liberty in the new york harbor reads, “give me your tired, your poor, your huddled masses yearning to breathe free…”
your somebodies.
i just read an article about a woman in texas suffering from a miscarriage. she sought medical assistance only to be turned away twice at hospitals afraid to treat her because of the unbelievably extensive abortion ban. doctors were fearful to help her. her condition worsened and, though it is not hyperbolic to say that many women can experience acute distress from the complications of miscarriage, they still did nothing.
this nation is actively seeking – and succeeding in – limiting the rights of women as they seek care for their own bodies, unconscionably imperiling them. somebodies.
i have watched the epstein survivors many times now, speaking out about the atrocities they endured – at the hands of so many heinous people who have not been brought to justice, whose culpability slips into oblivion as institutions – with twisted mission – protect them. i could feel their pain, their frustration, their horror at the culture of complicity, of silence, of irresponsibility, of unconcern, of sloughing them off. and in those moments i have whispered to them how very much a somebody they each are and how very much they count.
“it happened. it was wrong. it matters.” (deborah tuerkheimer – credible: why we doubt accusers and protect abusers)
i can so relate. i, too, am a somebody.
“…brave survivors speaking out about unspeakable things…”
so many unspeakable things.
changing entire lives.
it’s all too much.
we are ALL somebodies.
“we hold these truths to be self-evident, that all men are created equal, that they are endowed by their creator with certain unalienable rights, that among these are life, liberty and the pursuit of happiness. –that to secure these rights, governments are instituted among men, deriving their just powers from the consent of the governed, –that whenever any form of government becomes destructive of these ends, it is the right of the people to alter or to abolish it, and to institute new government, laying its foundation on such principles and organizing its powers in such form, as to them shall seem most likely to effect their safety and happiness.” (from: preamble to the united states declaration of independence)
somebody.
somebodies.
“…you are a child of the universe no less than the trees and the stars; you have a right to be here…(max ehrmann – desiderata)
it is tuesday. we just watched the press conference during which the sexual abuse survivors of the notorious epstein case spoke in support of releasing all the files – yet again. these women showed photographs of what they looked like at the age they were first groomed, molested, sexually abused and trafficked. on this cold november morning in the capitol city of our country, they once again pled for justice. because abuse is abuse and wrong is wrong. and this country should be sick to death of protecting the vile people who have taken part in this what-seems-eternal coverup of heinous crimes.
“they [epstein and maxwell] changed the trajectory of my life,” said one survivor as she described herself as a young woman, ready to step into her life, full of possibility – ‘before’.
yes. because grooming and sexual abuse and power and control and manipulation and the resulting devastation are suffocating. yes. because the trauma is all-encompassing – overarching – and is like glue stuck inside your body. yes. because this kind of devastation has tentacles that reach around and into survivors in all ways – emotionally, physically, relationally, professionally, spiritually, financially. yes. because when no one takes responsibility, when all who are culpable for this torturous takeover of your freedom of choice are not held accountable, it is spirit-crushing. yes. because it truly does change the trajectory of your life. yes. because ‘after’ is never the same as ‘before’.
but, these victim-survivors have courageously chosen to tell their truth and we are watching them rise to the beacon of light, look to the beacon of hope.
the hold of the past is slipping – even a smidge – and a tiny bit of healing is seeping in.
let’s hope that there is finally a moment when the rest of the power differential is broken, when morality and conscience and equality under the law take the lead, when survivors everywhere might find that justice is possible.
in the meanwhile – this interim period when we wait and watch and hold fast to the integrity of the truth – i – also a survivor of sexual abuse – will stand in the sun with them, my dandelion face rising above the darkness of predation and coverup.
“survival lies in sanity, and sanity lies in paying attention…” (julia cameron – the artist’s way)
here’s the thing i have discovered about mint: it is a survivor.
we bought the scrawniest mint plants – looking like they were fading away even as we paid our $2 for them. we brought them home and planted them in some good soil in an old barnwood planter that is somewhat self-destructing. we put the planter on the seat part of an old kitchen chair in the corner of our tiny potting stand garden, knowing that the sun would reach these tiny hopefuls and that these container gardens would have my rapt attention. and then we basically backed up and let nature do its thing.
and, despite some seriously hot weather, some seriously wet weather, some serious challenges from neighboring vines wishing to choke off access to nutrients, the mint has prevailed. it just keeps keeping on and the planters are burgeoning with mounds of luscious green mint.
i had heard – from people who know their stuff – that it would be important to keep mint in a planter rather than planting it in the ground. they said that mint would take over all else in the garden. i can see where that might be true – it is pervasive and aggressive about growing – resilient and tenacious and not at all timid.
which brings me to what i believe might be a good definition of an artist.
i had to have a crown re-affixed this past week – my utterly superb dentist simply popped the crown back on and aimed a blue light of some magical quality that will make it stay there. while i had my mouth gaping open he asked how we were and what we were up to. without the aid of consonants i said, “artist stuff” and he nodded.
artist stuff.
probably a better answer than “oh, we’re just being mint. you know.”
and yet, it is the job of an artist … to be mint. to be pervasive and aggressive about growing, resilient, tenacious and not at all timid. to keep growing despite all the odds, to keep creating regardless of acidic soil or toxic chance of sunstroke or over-saturation or dehydration. to keep paying attention and asking questions and pushing the boundaries – to simply survive.
I wouldn’t have compared myself (or d) to mint before. I would have preferred being sweet basil or maybe spicy jalapeños or willowy dill. or, better yet, i might like to be a pale pink sarah bernhardt peony or a daisy or a sunflower rising above a verdant farm field. mint seems so….survivalist.
but – even as i mosey through that fantasyland – the one where i am gracefully encompassing a body that is tasked with, well, different tasks – ones that are rewarded in traditional fiscally-rewarding ways – i am grateful to have been burdened with these tasks, the task of mint.
to keep on keeping on. to be as beautiful as the ordinary can be. to cling to living and to encourage others to pay attention to the very littlest things. to dance and laugh and sing raucously and to raindance sanity from the universe-sky to a world that is not sane.
“i believe art is utterly important. it is one of the things that could save us.”(mary oliver)
i spent much of last year looking back. way back. way past up-close. way way back – way way past the smallest of trees on the horizon. it was necessary and painful and shocking and mighty tedious.
“… the mind clings to the road it knows / rushing through crossroads / sticking like lint to the familiar…” (mary oliver)
and then you peel back the lint that is dryer-vent-covering it all. you wipe off the fuzzy pieces. you take a good hard look at what’s really there, at what you have softened with the padding of trying to forget, of stuffing you have piled on top of your frame, of what you have buried, of the traintracks you have sprinted ahead on, leaving the veritable picture of perspective – the v of traintracks running far behind – away away – with trees so small you can barely discern they are trees. and there it all is. raw.
and you can see it. and your brain tries to stop you from seeing it. both. so you sit with it – laden – burdened – in the retrospect of it all – connecting the dots, sometimes nodding your head in sudden understanding, sometimes eyes wide, horrified at it all.
it is surreal. you are back there. you can feel it. but you know – that in merely a blink – you can be where you are right now…where you are really.
and suddenly, you are at a crossroads. you must choose between replacing the lint – tamping it back down and turning your face away from it – or recognizing it as a shield, pulling it all out – this ancient insulation – discarding it and then staring at what’s left – what is now feeling air and space and attention.
“trauma creates change you don’t choose. healing is about creating change you do choose.” (michelle rosenthal)
and then, after some time – some processing, some sorting, some meaning-making, some swearing, much courage, sheer survival – you glance at all the baggage laying next to you – rolliebags and backpacks, crossbody bags and trunks, paper bags and reusable grocery sacks – and you pick up only that which you wish to carry.
and you make your way back up the tracks to the place you really are. the place by the big trees.
the seagull looked at me furtively, side-eyed. he acted like i just wasn’t there, stepping along the harbor channel wall at his own pace, seemingly not too nervous about my presence.
writing, i’m holding my weathered copy of jonathan livingston seagull in my hand. jonathan thrived. he left the traditional flock of gulls so that he could fly, soaring higher than he had ever soared. he was an outlier but was kind and loving, generous with the skills he learned.
i’m thinking he was as much an artist as those of us who are artists.
ever since, well, forever, i have had a thing about seagulls. i have a seagull collection in a box in the basement. in the 70s, it was a popular tchotchke – a plaster or wood base that looked like a piling or rocks or shoreline with a thin metal piece atop which was a seagull. sold in every beachfront town, i was – back then – a willing buyer. i had seagulls everywhere in my room. they represented the beach for me – my winter/spring/summer/fall sanctuary. and then i read richard bach’s book. and i was hooked. it resonated with me back then, this story of breaking away, hopefulness, dreaming, accomplishing. i was 18 and i was a jonathan-livingston-seagull.
my soaring seagull days ended abruptly at 19.
but in these days now – as i walk the lake michigan beach or hear the gulls as they fly overhead our house – i am reminded. the caw of the gull is reassuring and, as i gaze up watching them swoop and soar, i feel vestiges of the surf – the sound and the ocean from long ago. tide out. tide in.
i walked along the channel and, in parallel lines, the gull started to step along the wall. and then he stopped, put both feet firmly on the cement.
and, still looking at me sideways, whispered, “don’t forget you know how to fly.”
in the middle of tempestuous times, you stand firm, dedicated and focused. you fight for what you believe in, you hold fast to what seems important. you are a warrior and you have a mission and you are unparalleled strength.
and the times pass and the seas level out and you slowly allow the storm to dissipate and the roiling foam on the waves to evaporate. you are a survivor and you have grace – for yourself, for others – and you are immeasurable learning.
“the way you look at things is the most powerful force in shaping your life.” (john o’donohue – anam cara)
it is in the tight holding-on, the clenching, the grudge, that the embers burn hot, easily sparked. it is in the loose acceptance, the fluid release, the forgiveness, that the embers are merely for warmth.
i could hear the firetruck getting closer and closer, until suddenly red lights were spinning around our living room. our neighbors had a chimney fire. they were fortunate and the fire department responded quickly and doused the inside of the chimney with chemical to extinguish the fire. we’ve gotten several chimney estimates in recent months, now put aside for a bit of time in order to budget in the pricey work. our neighbors have the stainless steel flues we want to install and so we wondered about how those could allow a fire to start; we thought the reason to install those was to avoid such a danger.
but it seems that even with stainless steel flues, one must chimney sweep them every few years. because the residue builds up. and then it waits. for the perfect moment, so to speak. a spark – uncontrolled – to ignite.
life lessons from a chimney. we hold dear to things we never want to forget. these memories are close to our hearts and cherished. i guess we need be mindful of those other things…the residue…the things best lived through and then forgotten, washed out to sea, chimney-swept from the places in our hearts residue might hide.
there is a single tiny pink tulip stenciled in one corner of my daughter’s room. when i repainted her room as a surprise for her during her college years, i could not bear to paint over all the tiny tulips i had stenciled along the ceiling for my little girl’s room what seemed like five minutes before, so i left one. there is something about pink.
just looking at this peony – in full blossom – you can catch a whiff of the sweet scent of this flower. my niece sent me a picture the other day of her peonies with a note, “i wish they lasted longer than five minutes.”
our peonies sat tightly in bud for a few weeks until – suddenly – they exploded into glorious bloom. five minutes later – or maybe a split second or so – petals were scattering onto the patio but we could still catch whiffs on the breeze. but those five minutes…wow.
the botanic garden had all varieties of peonies, in all stages of bloom. you could stand in one place and twirl to see peonies in lush green growth, peonies in bud, peonies in bloom, peonies with blossoms wide, petals falling. there was something about these pink peonies.
my dear sister was recently diagnosed with breast cancer. a devastating blow, she has ridden the coaster of emotions and arrived at warrior. her surgery was a couple of weeks ago and she is waiting now – the interminable wait – for the pathology results. when she found the lump and the dimpling on her breast, she felt pretty sure it was cancer. but it was in the moments of biopsy results that her life changed. the five minutes during which she became a pink ribbon holder.
soon she will know more. she’ll know about the margins and the treatment going forward. she’ll know about how her recuperating pain will change over time. she’ll know about limitations and about percentages. she’ll know about genetics and maybe why she was diagnosed with the same – rarer – cancer our sweet momma had.
right now, she knows about these moments. the moments of abrupt change. the moments of gearing up for a fight. the moments of absolute vulnerability. the moments – from the very first one – of being a survivor. the moments of leaning on others to garner strength and hope. the moments of desperately trying to stay grounded. the moments of grabbing onto now and holding onto the gossamer ties.
there are no right ways. this is cancer and the journey is brutal, unfair, f-ed up. she is one patient in a world of patients. i desperately wish that was different.
my sister. she ordered chocolate ganache cake for lunch. she’s thinking about a pink ribbon tattoo. she is being a beautiful peony.
and, suddenly, a prolonged tacet. no notes. no instrumentation. no expression markings. no crescendos or decrescendos. just silence. the baton is laid down. there is no beat pick-up. there is no rest. it is silence. issued. written in the music. a ritenuto – screeching to slow, a subito tacet. suddenly still.
the reassurances are generous, heartfelt. they are reflexes, like putting out your hand when you fall. they are meant to help in the silence, in the sudden slowdown, the sudden stop, the fermata holding the tacet. they make my heart quiver, these well wishes. but they don’t change the composer’s notes in the music: the ritenuto. the tacet. the fermata. those are printed in the music; those are decreed. they are unquestionable, immovable, indisputable, final.
i was voted off the island, in “survivor” talk. it was not an island, but, nevertheless, i am not a survivor. not there, anyway. i am forever tacet-ed there. the fermata above my tacet-ed head reminds me.
it, too, reminds me to be still. to step lightly. to be gentle with myself. i run the scores in my head – scores of scores in that place. i emoted each expression marking, each twist of the music, each gradual shaping, each change of tempo, of timbre, of voice.
and now.
i opened this book randomly, hoping to arrive on a page that might offer me wisdom. i read: “upheavals in life are often times when the soul has become too smothered; it needs to push through the layers of surface under which it is buried….it reminds us that we are children of the eternal and our time on earth is meant to be a pilgrimage of growth and creativity.”(john o’donohue)
it doesn’t feel like a platitude. i’ve read it over and over and over again now since the morning i was fired. i wonder, each day, when the baton will be lifted, when the pick-up beat will come. i remember the all-engulfing power of change works both ways – to decimate and to breathe new life. i – try – to trust the dusty trail i am reluctantly set upon.
upheaval. sudden arrival at prolonged silence. not much more upheaval for an artist than silence. yet, as i sit in this silence, deemed as fitting by the composer, i feel the root-vegetable-of-my-soul gathering energy. with no idea and no preconception, i await as it will push through the earth one day, steeped in nutrients, rooted in rich soil.
my sweet momma said, “live life, my sweet potato.” oh wise woman, you must have known.
1980. it’s not often i have listened to this song since four decades ago when i recorded it. i was a mere 20. listening to it warbling now, in the way that only old cassettes can warble, has been a mixed bag: this cassette master, with little studio experience, with reel-to-reel recording, with no auto-tune for my young nervous soprano-ish voice, with too-sweet flute lines and picked guitar, measures-too-long-instrumental-interlude; i am catapulted back.
it is shocking to hear the innocence. it is shocking to hear the pain. if my wednesday post this week was too much, i would hasten to add that this will be as well. this is a song about stripping a young woman of choice, of what should be the blissful love of first intimacy, of no justice, of no opportunity to process. it’s the story of sexual assault in the late 1970s. it’s the story of sexual assault any time. it changes everything. every trajectory. it’s my story.
NO BALLOONS is a song of the times. especially for someone who listened to john denver, james taylor, carole king, joni mitchell, bread, loggins and messina, america, england dan & john ford coley, the carpenters – the A-team of verse-chorus-verse-chorus-bridge-interlude-chorus. simple melodies, simple instrumentation, simply written, simply sung.
i can’t believe i didn’t write it in the vein of led zeppelin or kiss. it should have been a screaming heavy metal song, full of pointed weapons of anguish, of power-stripped anger. instead, it sounds like a sweet love-gone-bad song, “you take away my hopes, my dreams, you give me no balloons to fly.” only it’s not. it’s about no air. no breath.
“and now with my eyes closed, i no longer see the pain in yours or feel it in mine…” and that was a product of the times as well. i closed my eyes and silenced my voice. i stopped feeling it. or did i? “and i cried as long as the rain lasted and when it stopped i stopped.” was it really that simple?
until this week i really never thought i would share this song again. after all, the song is 40 years old; i’m an alto, perched firmly on the tenor shore. but somehow, between the #MeToo movement and the swirling-around-us-in-the-world-contention and public court battles in recent media and the lack of regard for those who truly need help or healing and my aunt’s texted article and the weeping inside of my younger-self and my silenced-silence, it felt like it was time to be vulnerable and candid and believe that our muddy-boots-narratives might make a difference for someone else.
we each have a story, a timeline, an arc that takes us through this life. things we want to remember in detail, things we desperately want to forget. things we have lived boisterously out loud, things we have lived in despairing silence. the tapestry that holds all these threads together is the soul of our experience, the way we can hear others and truly listen, the empathy we can employ in a world that seems to cite MeFirst instead of UsTogether.
i wouldn’t wish this experience on anyone. i’m pretty sure that every day since those-dark-days-in-the-late-70s i have both been affected and have effected because of them. i have made choices and non-choices, taken action and had reflexive reaction. i have searched for answers.
but i also know that my heart was blown open. i am not standing on a different rung of the ladder, too high up to understand or remember, too discurious to ask, too blinded to see, too discriminating or apathetic to care.
i am next to anyone who needs me to listen, really listen. i am next to anyone who needs me to jump and catch their balloons before they have flown too far to reach.
reverse threading 